

In IHer Words...Living with IH ~ IH Awareness Month Day 4 💚💙
Another IHer posed the question...What do you want people to understand about living life with IH? Scroll through them. You can find...


IH Awareness Month - Day 3
truth and it's loving it way too much the past year... #IHAwarenessMonth #IH #PTC #intracranialhypertension #pseudotumorcerebri...


My Story IH Awareness Month - Day 2
My IH story begins with hearing the words pseudotumor cerebri in 2006. If you look back in my blog, you may see a post about my...


IH Awareness Month - Day 1
Today is the first day of Intracranial Hypertension Awareness Month! Looking back on my daily posts from last year, I wish I was in a...


I Quit Life! - I Get The Chronic Disease Medical Cycle (Updated 8/30)
There is a lot of hopelessness that happens when you have chronic diseases. It isn't just the disease itself, it the medical cycle you...
Dear Emergency Room Doctor...
If you don't know the story of this ER visit, you can find it on the blog post The Emergency Room Visit That Changed My Views on...
The Emergency Room Visit That Changed My Views on Medicine...
In late December of 2013, I ended up with extreme head pain. I'm not a strange to head pain in any way because I have Intracranial...
Frustration
When I was in the hospital (including massive IH pain), I missed a neuro-ophthalmologist appointment. Next appointment? End of May. ...
A blog post from Ashley Boynes-Shuck
"Somehow, in the always-connected world of social media, the era of the 24/7 news cycle, we’ve lost the ability to empathize with others....


What is IH?
from the Intracranial Hypertension Research Foundation website Intracranial hypertension literally means that the pressure of...