In IHer Words...Living with IH ~ IH Awareness Month Day 4 💚💙
Another IHer posed the question...What do you want people to understand about living life with IH? Scroll through them. You can find...
IH Awareness Month - Day 3
truth and it's loving it way too much the past year... #IHAwarenessMonth #IH #PTC #intracranialhypertension #pseudotumorcerebri...
My Story IH Awareness Month - Day 2
My IH story begins with hearing the words pseudotumor cerebri in 2006. If you look back in my blog, you may see a post about my...
IH Awareness Month - Day 1
Today is the first day of Intracranial Hypertension Awareness Month! Looking back on my daily posts from last year, I wish I was in a...
Help donate with one click
Want to donate to the NORD general research fund without spending a cent? Click on this link (or the image) and Lundbeck will make a $1...
Twice in one month...and probably never again
So this happened today and may never happen again...2 doctors said I was right all along. In the same calendar month! Cardiologist let me...
Help donate with one click
Want to donate to the NORD general research fund without spending a cent? Click on this link (or the image) and Lundbeck will make a $1...
Rare Disease Day Challenge
Want to help raise awareness for Intracranial Hypertension? Let's bring back the Blindfolded Brainfreeze Challenge on World Rare Disease...
When a spinal tap turns into an emergency room visit
So a couple of weeks ago (if you saw my post) I had finally had it out with my Neuro opthamologist. I'm sure he's a great guy but he...
Sometimes the patient moves ahead...
I'm not going to sit and wait anymore. Four years of head pain every day of at least a 6/10 is too long to play this game. I'm active...
