Rare Disease Day Challenge
- mycorneroftheworld
- Feb 12, 2017
- 2 min read
Want to help raise awareness for Intracranial Hypertension? Let's bring back the Blindfolded Brainfreeze Challenge on World Rare Disease Day!
How the challenge works: Step 1: Get a slurpee, ice cream, or ice water and video or live stream yourself getting a brain freeze while blindfolded on Rare Disease Day. Leave a comment or message me to be on the list to find out how to create a brain freeze.
Step 3: Nominate a friend or 2 to take the challenge!
Step 4: Feel amazing that you're doing your part to help spread awareness for those of us with Intracranial Hypertension!
The thought of brain freeze alone have you cringing? Take the spare change in your car console and donate to the Intracranial Hypertension Research Foundation (IHRF) and help support research to find better medications and a cure for IH!
Want to donate but need a present for someone at the same time? I have set up a fundraising page for the IHRF on bravelets. 10% of each item is donated directly to IHRF for each item purchased!
Want to see what the challenge looks like? Here's mine from 2014. Be gentle, it was 2.5 years ago on an old computer.
You can also find a playlist of challenge videos on YouTube here.
It sounds like a cold challenge but it is a minimally painless way to help spread awareness for IH!
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