Empty... #IH #POTS #RA

Empty is an emotion that comes around several times in the cycle of my chronic diseases. It also comes back up whenever there is the passing of someone who could be me.

I couldn't even begin to count how many people with IH, RA and POTS have been lost the past 6 months. Some have been lost from the diseases themselves, others because they accidentally take too many meds to try to break free from the pain, still others because they couldn't take it anymore.

I understand the I can't take it feeling. I get that feeling in passing or for chunks of time in the cycle that is the diseases. So I understand. I understand the endless doctors appointments. I understand the medications that may or may not work. I understand the pain that you just want to stop because it is constantly attacking you. I get it. I have talked to others when they are at that point. I have been there and had others talking to me.

While I see more with the same diseases are in the hospital or struggling in other ways, I remember how mortal we all are inside. Even when we believed that we could fly, we are tied to the earth.

#POTS #posturalorthostatictachycardiasyndrome #RA #rheumatoidarthritis #IH #intracranialhypertension #rarediseaseday #raredisease #blog