2,191 Days
That's how long it's been since I've been having daily head pain of at least 6 out of 10. 6 years is a long time and the past 11 months...
I Am Fine?
Someone asked if I have forgotten about my blog or am getting rid of updates. I haven't forgotten about anything. Believe it or not I...
Comparing Illnesses
I dislike the phrase "but it's nothing compared to what you have going on." Don't devalue what you are going through by comparing it to...
Surgeries and Surgeries
2017 has been a crazy year. In addition to multiple hospital stays, I ended up having a VP Shunt put in for my IH. The shunt install on...
Twice in one month...and probably never again
So this happened today and may never happen again...2 doctors said I was right all along. In the same calendar month! Cardiologist let me...
Rare Disease Day Challenge
Want to help raise awareness for Intracranial Hypertension? Let's bring back the Blindfolded Brainfreeze Challenge on World Rare Disease...
When a spinal tap turns into an emergency room visit
So a couple of weeks ago (if you saw my post) I had finally had it out with my Neuro opthamologist. I'm sure he's a great guy but he...
Sometimes the patient moves ahead...
I'm not going to sit and wait anymore. Four years of head pain every day of at least a 6/10 is too long to play this game. I'm active...
Circles
Do you ever feel like your world is just a bunch of circles? Quite often I feel that way with medicine. I started having an issue with...
I hate IH
I hate Intracranial Hypertension. It sounds like something that is common sense. But no I really hate it. I hate the head pain and...
