Circles

Do you ever feel like your world is just a bunch of circles?

Quite often I feel that way with medicine.

I started having an issue with passing out 9 months ago. At the time, it was blamed on sepsis and they moved on. But it didn't get better enough to go away.

I have a diagnosis of POTS that could give a reason why it could be happening but there's two problems with it:

- One neuro wants me to see the POTS doctor again. I am wait listed. I am still wait listed. I was told to quit calling and asking when I come up on the list twice.

- My other neuro, I never see. Not because I don't go but because you see that neuro once then see his NP. The NP insists that I don't have POTS and that the neuro said I didn't. I approached that topic before with this neuro when he say me in the hospital. The neuro said the tilt table test doesn't lie. I asked if his NP was lying then, he said I have POTS and dropped the topic.

So for months, I've been seeing his NP and my neuro ophthalmologist who keep saying the other person can try something, everything is good on their side. Months and months and months of hearing it. Until September, when the NP says he has nothing to try and I need to see another neuro or see that neuro then someone else because they've tried everything for my head pain. I see neuro ophthalmology and they say see the neuro because I can see multiple plans they haven't tried.

So I waited and waited and waited. My appointment came Monday. I went in ready for battle. Not even a battle on the passing out but a battle on my head pain. I was ready for this battle, I was ready to drag my neuro across the waiting room to my neuro ophthalmologist and make them talk. I was ready to say, I am not leaving this building until something is done.

I went ready for battle, and didn't need it. The neuro walked in and only wanted to discuss the passing out. He wanted to know if I had refused a med? If you know me, you know how ridiculous it sounds. I try every med they ask me to. So I walked out in less than 10 mins with a new prescription I should have been on for months for not only the passing out but the head pain.

So begins the circle. I will be on this new med for two weeks then I see the neuro's NP. I asked the neuro if he was sure I could see his NP because the NP said he couldn't do anything for me anymore and to see someone else. He said see the neuro anyway. So we will see...

#POTS #POTSLife #posturalorthostatictachycardiasyndrome #IH #IH #intracranialhypertension #headpain #blog